I have been told quite a lot lately by people who have read my blogs that I am brave. I do not consider myself brave, just merely honest and wishing to raise awareness into a disease that is invisible to many. I do not hide behind the disease, I am not ashamed of it and … Continue reading The many faces of ME
Brrrrr....it is definitely getting colder here in the UK and with that my pain levels soar! A name given to it by researchers is dysautonomia! This means the dysregulation of the autonomic nervous system which is what controls our homeostasis. This is what keeps things like our heart rate, digestion, and body temperature within normal parameters. … Continue reading Baby its cold outside…..
You would think that the mere suggestion within the name of Chronic Fatigue Syndrome (ME) would mean that all we do is sleep, we are always tired - unfortunately that is so far from the actual truth! It really doesn't work that way and as with many elements of the illness the rules of a … Continue reading To sleep or not to sleep – that is the question
This is a subject that some find very hard to speak about but it is also a very important part of having a chronic illness. I went from a healthy person to a chronically ill person overnight and that brought many trials and challenges with it. You go through the same process of grief that … Continue reading Grieving The Life I Had
About 2 years into this wonderful world of ME that dastardly symptom by the name of insomnia came knocking at my door. I have asked him to leave on many occasions but unfortunately he has his feet firmly under my table...or bed! I have never experienced insomnia to this level before in my life and … Continue reading I’m so tired!
It was January 2016, a year after I was hit by this horrible debilitating illness that is ME. My son at that time was aged 13 and after Christmas felt unwell. We didn't think too much of it, he was probably tired from all the Christmas fun and the winter months always bring out those … Continue reading You must be joking right?!
What on earth is Myalgic Encephalomyelitis?! What a mouthful that is! Some of you reading this maybe new to this disease and so I thought I would give a little insight for you. Myalgic Encephalomyelitis (ME), commonly known as Chronic Fatigue Syndrome (CFS) or ME/CFS, is a devastating multi-system disease that causes dysfunction of the neurological, … Continue reading What’s it all about?
Back to May 2015 and I am still in immense pain with a number of other symptoms to boot with no real help or advice from my GP. It got to a point where enough was enough. My family could not sit back and watch me suffer any longer. The family member who put me … Continue reading The day it began – part 2
It was 1st January 2015, a Happy New Year for some, not so much for me. I decided to go Christmas bargain sale shopping with my husband and two children - why not! Everyone loves a bargain and we needed the fresh air after being stuck inside. Off we travelled with not a care … Continue reading The day it all began