I want to take this opportunity to talk about my husband, my soul mate, my rock. We have been married for 12 years this year but have been together for 20+ years. We even went to school together but the spark did not come until much later. Often in my struggle to see any positives … Continue reading In Sickness And In Health
So, this year's ME Awareness week is nearly upon us. It raises varying emotions for me but I am comforted that I am not alone. It seems impossible that in this day and age there are literally millions of us missing from our lives. Surely you must think that it is just a number plucked … Continue reading Why I need you to understand
All over social media you will see talk of the Millions Missing but more so at the moment as we head towards the next global protest for 2019. So what is The Millions Missing all about? Well, it near enough says what it is - Millions Missing. Sufferers are missing from their lives and there … Continue reading We Are The Millions Missing
A New Year Firstly I would like to apologise for my absence on here. I have wanted to keep my blog up to date but many things have stopped me doing so. The start of 2019 has not been a very good one for our family but I hope that we have had all the … Continue reading I am still here
I have been told quite a lot lately by people who have read my blogs that I am brave. I do not consider myself brave, just merely honest and wishing to raise awareness into a disease that is invisible to many. I do not hide behind the disease, I am not ashamed of it and … Continue reading The many faces of ME
Brrrrr....it is definitely getting colder here in the UK and with that my pain levels soar! A name given to it by researchers is dysautonomia! This means the dysregulation of the autonomic nervous system which is what controls our homeostasis. This is what keeps things like our heart rate, digestion, and body temperature within normal parameters. … Continue reading Baby its cold outside…..
You would think that the mere suggestion within the name of Chronic Fatigue Syndrome (ME) would mean that all we do is sleep, we are always tired - unfortunately that is so far from the actual truth! It really doesn't work that way and as with many elements of the illness the rules of a … Continue reading To sleep or not to sleep – that is the question
This is a subject that some find very hard to speak about but it is also a very important part of having a chronic illness. I went from a healthy person to a chronically ill person overnight and that brought many trials and challenges with it. You go through the same process of grief that … Continue reading Grieving The Life I Had
About 2 years into this wonderful world of ME that dastardly symptom by the name of insomnia came knocking at my door. I have asked him to leave on many occasions but unfortunately he has his feet firmly under my table...or bed! I have never experienced insomnia to this level before in my life and … Continue reading I’m so tired!
It was January 2016, a year after I was hit by this horrible debilitating illness that is ME. My son at that time was aged 13 and after Christmas felt unwell. We didn't think too much of it, he was probably tired from all the Christmas fun and the winter months always bring out those … Continue reading You must be joking right?!