Opening My Eyes

I've pondered over sharing this for a while but I believe that I can help others to know that they are not alone if I do. This is far from a pity post, just simply sharing my story. Am I anxious of the reaction it will bring, that going to stop! When I … Continue reading Opening My Eyes

September Already?!

Wow! Where is this year going? They say time goes faster as you get older and I can totally relate to that! This time of year is always fast paced for our family once we hit September and my daughter returns to school. Her birthday is in this month followed by the Bridgwater Fair which … Continue reading September Already?!

In Sickness And In Health

I want to take this opportunity to talk about my husband, my soul mate, my rock. We have been married for 12 years this year but have been together for 20+ years. We even went to school together but the spark did not come until much later. Often in my struggle to see any positives … Continue reading In Sickness And In Health

Why I need you to understand

So, this year's ME Awareness week is nearly upon us. It raises varying emotions for me but I am comforted that I am not alone. It seems impossible that in this day and age there are literally millions of us missing from our lives. Surely you must think that it is just a number plucked … Continue reading Why I need you to understand

We Are The Millions Missing

All over social media you will see talk of the Millions Missing but more so at the moment as we head towards the next global protest for 2019. So what is The Millions Missing all about? Well, it near enough says what it is - Millions Missing. Sufferers are missing from their lives and there … Continue reading We Are The Millions Missing

I am still here

A New Year Firstly I would like to apologise for my absence on here. I have wanted to keep my blog up to date but many things have stopped me doing so. The start of 2019 has not been a very good one for our family but I hope that we have had all the … Continue reading I am still here

The many faces of ME

I have been told quite a lot lately by people who have read my blogs that I am brave. I do not consider myself brave, just merely honest and wishing to raise awareness into a disease that is invisible to many. I do not hide behind the disease, I am not ashamed of it and … Continue reading The many faces of ME

Baby its cold outside….. is definitely getting colder here in the UK and with that my pain levels soar! A name given to it by researchers is dysautonomia!¬† This means the¬†dysregulation of the autonomic nervous system which is what controls our homeostasis.¬† This is what keeps things like our heart rate, digestion, and body temperature within normal parameters. … Continue reading Baby its cold outside…..

To sleep or not to sleep – that is the question

You would think that the mere suggestion within the name of Chronic Fatigue Syndrome (ME) would mean that all we do is sleep, we are always tired - unfortunately that is so far from the actual truth! It really doesn't work that way and as with many elements of the illness the rules of a … Continue reading To sleep or not to sleep – that is the question

Grieving The Life I Had

This is a subject that some find very hard to speak about but it is also a very important part of having a chronic illness. I went from a healthy person to a chronically ill person overnight and that brought many trials and challenges with it. You go through the same process of grief that … Continue reading Grieving The Life I Had